-A-
Albinism
National Organization for Albinism and Hypopigmentation
1530 Locust Street Box 29
Philadelphia, PA 19102
Phone: (215)545-2322 or (800)473-2310
Web page: http://www.albinism.org
Alopecia Areata
National Alopecia Areata Foundation
710 “C” Street, Suite 11
San Rafael, CA 94901
Contact: Vicki Kalabokes, Chief Executive Officer
Phone: (415)456-4644
Web page: http://www.alopeciaareata.com
-B-
Basal Cell Carcinoma
American Behcet’s Foundation, Inc.
PO Box 54063
Minneapolis, MN 55454-0063
Birthmarks
The Hemangioma and Vascular Birthmark foundation
PO Box 106
Latham, NY 12110
-D-
Darier-White Syndrome (See Ichtthyosis)
American Celiac Society
58 Musano Court West
Orange, NJ 07052
Phone: 973-325-8837
Celiac Disease Foundation
3251 Ventura Blvd. #3
Studio City, CA 91604-1838
Phone: 818-990-2354
Web page: http://www.celiac.org
Gluten Intolerance Group of North America
15510 10th Avenue, SW, Suite a
Seattle, WA 98166
Phone: 206-256-6652
Web page: http://www.gluten.net
Dermatology
American Academy of Dermatology
1350 I Street N.W. Suite 870
Washington, D.C. 20005-3305
Phone:
202-842-3555
Web page: http://aad.org/
Dermatomyositis
Muscular Dystrophy Association (MDA)
3300 East Sunrise Drive
Tucson, AZ 85718
Phone: 800-572-1717
Web page: http://www.mdausa.org
-E-
Eczema
The National Eczema Society
163 Eversholt Street
London, NW1 IBU United Kingdom
Phone: 44-71-388-4097
Web page: http://www.eczema.org
The National Eczema Association for Science & Education
1221 S.W. Yamhill, Suite 303
Portland, OR 97205
Phone: 503-228-4430
Erythema Multiforme, Stevens Johnson’s syndrome
Stevens Johnsons’s Syndrome Foundation
9285 N. Utica Street
Westminster, CO 80030
Phone: 303-430-9559
-G-
Gluten Intolerance (See Dermatitis Herpitformis)
-H-
Hansen’s Disease (See Leprosy)
Hemangiomas
The Hemangioma and Vascular Birthmark Foundation
PO Box 106
Latham, MY 12110
Web page: http://www.birthmark.org
Hemochromatosis
Hemochromatosis Research Foundation
PO Box 8569
Albany, NY 12208
Phone: 518-489-0972
Herpes
Herpes Resource Center American Social Health Association
PO Box 13827
Research Triangle Park, NC 27709
Phone: 919-361-8488
Web page: http://www.ashastd.org
Histiocytosis
Histiocytosis Association of America, Inc.
302 N. Broadway
Pitman, NJ 08071
Phone: 800-548-2758
-I-
Icthyosis
Foundation for Ichthyosis & Related Skin Types, Inc.
PO Box 669
Ardmore, PA 19003-0669
Phone: 610-789-3995 or 800-545-3286
Web page: http://www.scalyskin.org
National Registry for Ichthyosis & Related Skin Disorders
University of Washington
Box 356524
Seattle, WA 98195
Phone: 800-595-1265
-K-
Klippel-Trenaunay Syndrome
K-T Syndrome Suppport Group
4610 Wooddale Avenue
Edina, MN 55424
Phone: 612-925-2596
-L-
Leprosy
Damien Dutton Society for Leprosy Aid, Inc.
616 Bedford Avenue
Bellmore, NY 11710
Phone: 516-221-5829
Gillis W. Long Hansen’s Disease Center
5445 Point Clair Road
Carsville, LA 70721
Phone: 504-642-4700
Lupus
American Lupus Society
3914 Del Amo Blvd. Suite 922
Torrance, CA 90503
Phone: 213-542-8891 or 800-331-9802
Bay Area Lupus foundation
2635 North First Street, Suite 206
San Jose, CA 95134
Phone: 408-954-8600 or 800-558-0121
Web page: http://www.lupus.org
Massachusetts Chapter
425 Watertown Street
Newton, MA 02158
Phone: 617-332-9014
Lymphomatoid Papulosis
Lymphomatoid papulosis Central Registry
Department of Pathology
Beth Israel Hospital
330 Brookline Avenue
Boston, MA 02215
Phone: 617-667-5886
-M-
Melanoma
-N-
Neurofibromatosis
National Neurofibromatosis Foundation
95 Pine Street 16th Floor
New York, NY 10005
Phone: 212-344-6633 or 800-323-7938
Web page: http://www.nf.org
Nevi
Nevus Network-Congenital Nevus Support Group
PO Box 1981
Woodbridge, VA 22193
Phone: 703-492-0253
Web page: http://www.nevusnetwork.org
-O-
Ostomy
United Ostomy Association
19772 MacArthur Blvd., Suite 200
Irvine, CA 92612-2405
Phone: 714-660-8624 or 800-826-0826
Web page: http://www.uoa.org
-P-
Port Wine Stain
National Congenital Port Wine Stain Foundation
125 east 634d Street
New York, NY 10021
Phone: 516-867-5137
Porphyria
American Porphyria Foundation
PO Box 22712
Houston, TX 77227
Post Herpetic Neuralgia
VZV Research Foundation
36 East 72nd Street
New York, NY 10021
Phone: 212-472-3181
Pseudoxanthoma Elasticum
National Association for Pseudoxanthoma Elasticum
3500 East 12th Avenue
Denver, CO 80206
Phone: 303-355-3866
Web page: http://www.napxe.org
PXE International, Inc.
4301 Connecticut Avenue, NW #204
Washington, DC 20008-2369
Web page: http://www.pxe.org
Pseudofolliculitis Barbae
Pseudofolliculitis Barbae Sufferers of America, Inc.
PO Box 3761
Port Arthur, TX 77643
Phone: 409-982-2206
Psoriasis
International Federation of Psoriasis Associations
6600 SW 92nd Avenue, Suite 300
Portland, OR 97223-7195
Phone: 503-244-7404
National Psoriasis Foundation
6600 S.W. 92nd Avenue # 300
Portland, OR 97223-7195
Web page: http://www.psoriasis.org
Problem Psoriasis Clinic
909 Ridgeway Loop road
Memphis, TN 38103
Phone: 901-767-3612
Psoriasis Research Institute
600 Town & Country Village
Palo Alto, CA 94301
Phone: 415-326-1848
Psoriasis Society Of Canada National
Office PO Box 25015
HallFax, NS B3m 4h4 Canada
Phone: 902-443-8680
-R-
Rosacea
National Rosacea Society
800 S. Northwest Highway, # 200
Barrington, IL 60010
Phone: 847-382-8971 or 888-662-5874
-S-
Sarcoidosis
National Sarcoidosis Resource Center
PO Box 1593
Piscataway, NJ 08855-1593
Phone: 732-699-0733
Scleroderma
Scleroderma Info Exchange, Inc.
150 Hines Farm Road
Cranston, RI 02921
Phone: 401-943-3909
Scleroderma Research Foundation
Pueblo Medical Commons
2320 Bath Street, Suite 307
Santa Barbara, CA 93105
Phone: 800-441-2873
Shingles
VZV Research Foundation
40 East 72nd Street
New York, NY 10021
Phone: 212-472-3181
Skin Cancer
Skin Cancer Foundation
149 madison Avenue Suite 901,
New York, NY 10016
Phone:
212-725-5176
Web page: http://www.skincancer.org
Sjogren’s Syndrome
National Sjogren’s Syndrome Association
5815 North Black Canyon Highway, Suite 103
Phoenizx, AZ 85015-2200
Phone: 602-433-9844
Web page: http://www.sjogrens.org
Sjogren’s Syndrome Foundation, Inc.
333 N. Broadway, Suite 2000
Jericho, NY 11753
Phone: 516-933-6365 or 800-475-6473
Web page: http://www.sjogrens.com
Back to the Top
|
